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The history of civil rights for people with intellectual disabilities in 20th century America
On the Margins of Citizenship
Intellectual Disability and Civil Rights in Twentieth-Century America
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Allison C. Carey
"On the Margins of Citizenship is a remarkable book. It has a broad scope, impressively addressing the history of American twentieth-century intellectual disability empirically at the individual, community, and policy levels."
—Richard Scotch, Professor of Sociology and Public Policy, University of Texas at Dallas
On the Margins of Citizenship provides a comprehensive, sociological history of the fight for civil rights for people with intellectual disabilities. Allison Carey, who has been active in disability advocacy and politics her entire life, draws upon a broad range of historical and legal documents as well as the literature of citizenship studies to develop a “relational-practice” approach to the issues of intellectual disability and civil rights. She examines how and why parents, self-advocates, and professionals fought for different visions of rights for this population throughout the twentieth century and the changes that took place over that time.
Carey addresses the segregation of people with intellectual disabilities in schools and institutions, along with the controversies over forced sterilization, eugenics, marriage and procreation, and protection from the death penalty. She chronicles the rise of the parents’ movement and the influence of the Kennedy family, as well as current debates that were generated by the impact of the 1990 Americans with Disabilities Act.
Presenting the shifting constitutional and legal restrictions for this marginalized group, Carey argues that policies tend to sustain an ambiguity that simultaneously promises rights yet also allows their retraction.
Reviews
"On the Margins of Citizenship makes an important contribution to the sociology and American history of intellectual disability. It draws together and analyzes the development of legal rights that affect people with this disability. I am especially impressed with Carey's theoretical grounding. It is clear, succinct, and convincing. This is an excellent work that will prove to be important to scholars and activists interested in intellectual disability."
—James Trent, Professor of Sociology, Gordon College
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About the Author(s)
 | Allison C. Carey is an Associate Professor in the Department of Sociology and Anthropology at Shippensburg University. |