Finding the way home without a map
Growing Up with a Disability in America
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"When I was growing up, I learned that if you were a girl you went to school and college, then you married, became a wife and had a family. . . . When I became disabled, my journey, I was pretty sure, was not going to take me in those directions. What was I supposed to be? What kind of life was I supposed to have?"
Once polio had made her a quadriplegic, Cass Irvin didn't know where she fit in or what would become of her. Neither did her parents, teachers, counselors, or rehabilitation therapists. And so began her search for a place to call home.
In this memoir, Cass Irvin tells of the remarkable journey that transformed her from a young girl too timid to ask for help to a community activist and writer who speaks forcefully about the needs of people with disabilities. As a young girl she was taken to Warm Springs, Georgia, where she learned about living as a disabled person and found a hero in Franklin Delano Roosevelt, the famously if silently disabled president. Bright and inquisitive, Cass soon began to question the prevailing assumptions of a society that had no place for her and to question her own meekness.
In time, her keen sense of injustice gave her the courage to fight for a college education. That personal victory emboldened her to find the means to live independently, but it also persuaded her that political work is the key to enabling all people with disabilities to live fulfilling lives. This book, then, is testimony to the importance of community building and organizing as well as the story of one woman's struggle for independence.
"Home Bound delivers a slice of history that is relatively well known to the public-at-largeRoosevelt, Warm Springs, JFKas well as a slice that is relatively unknownthe disability rights movement. There is a remarkable ring of 'truth' and authenticity. There is also a freshness and honesty. [Irvin] writes with a certain rawness and enthusiasm. I loved the energy of this book and the people I visited and revisited as I read. Home Bound speaks across 'disability lines.' It is powerful, well-written, and hard to put down."
"The author's courage to overcome obstacles makes this book an inspiration for readers living with any kind of disability, and non-disabled adults will gain increased understanding from her remarkable story."
"Home Bound is like no other disability book I've ever read...this book is candid...interesting with the little details that make up the cornerstones of disability culturalization."
"...more than a life story, [it] is also a meditation on the experience of disability in America....It is not the remarkable life of the author that sets this book apart, it is the unembellished way that she writes about it."
"A hard life lived well. This is what makes it an important book."
"...an engaging read."
"Cass Irvin deserves much credit for thoughtfully and provocatively rendering her story."
"Irvin's book is destined to become a classic in disability studies, disability history and disability policy. Written with eloquence and humor, it provides convincing examples of the key concepts of the disability rights movement.... While this book reads like an autobiography or a novel, it is a book to be revisited many times."
"The book is candid, sustaining the reader's interest with the little details that make up the cornerstones of disability acculturation.... Irvin wrote a book that looks straight at us through the eyes of living disabled, and rarely blinks."
"Through well-written and memorable anecdotes about everything from interviewing personal assistants to negotiating public transportation, Irvin gives readers a rare window into the daily struggles of people with disabilities."
"...a fascinating description of growing up with a disability."
"...a testimony to the importance of community building and organizing as well as the story of one woman's struggle for independence."
"Irvin [is] a gifted writer...She illumines family life, relationships, combat stories of advocacy and narratives of the lives of other folks affected by the disability advocacy movement. In Cass Irvinís resolute pursuit of a meaningful and independent life - despite the countervailing forces that abound in American culture - she gives us humor, realism and abiding hope. Read this book. Please."