Institute Events and Trainings
Institute on Disabilities at Temple University

RESEARCH & EVALUATION

Quality Management/Quality Assurance

Independent Monitoring for Quality (IM4Q) is a statewide initiative funded by The Office of Developmental Programs. Individuals with intellectual disabilities are surveyed face-to-face by teams that include individuals with disabilities and/or family members. The survey focuses on quality of life measures. (Funded by the Pennsylvania Department of Public Welfare, Office of Developmental Programs)

Institute researchers also conduct studies on state of the art measurement of quality outcomes. Conclusions about the effectiveness of interventions for persons with disabilities may vary depending on the methodology used to assess the interventions. We have compared various statistical methodologies, to determine whether the use of more traditional, simpler methods can be as useful as more computationally-intensive methods that are not as transparent to clinicians and educators. (Funded by the National Institute on Disabilities and Rehabilitation Research)

Web-based data collection is an important and growing development in research on outcomes, and Institute investigators also work to understand its implications and improve its usefulness and accessibility. For example, a recently completed study demonstrated that web-based survey data collection can lead to franker assessments of the burden of care experienced by family members than telephone survey data collection. Another study solicited opinions from patients with disabilities about their preferences in a web-based outcomes data collection tool. (Both of these studies funded by the National Institutes of Health.)

Institute on Disabilities' investigators, staff and collaborators

Investigator(s):
Guy Caruso
Celia Feinstein
Jim Lemanowicz

Collaborators:
PA Office of Developmental Programs, PA
Developmental Disabilities Council, 38 local IM4Q Programs statewide
Walter Hauck, PhD - Senior Scientific Fellow at the United States Pharmacopeia
Philip Goodman, PhD - University of Nevada at Reno
Richard Goldstein, PhD - Spaulding Rehabilitation Hospital, Boston
John Graham, PhD - Pennsylvania State University
Marcia Polansky, Sci D - Drexel University
John Whyte, MD, PhD - Moss Rehabilitation Research Institute


Institute on Disabilities' Presentations/ Publications

Segal M, Goodman R, Goldstein R, Hauck W, Whyte J, Graham J, Polansky M. ( 2006) The accuracy of artificial neural networks in predicting long-term outcome after traumatic brain injury. Journal of Head Trauma Rehabilitation 21: 298-312.

Segal, M.( March 2005) What Patients Tell Us about Communicating Their Health Status to Clinicians Using a Web Interface. Health Information Technology Summit West San Francisco, CA

Segal, M. (Novemeber 2006) Caregiving Burden Responses Differ for Internet and Telephone Data Collection. American Medical Informatics Association Annual Meeting Washington DC

REFERENCES FOR STATEWIDE REPORTS

Each year, in addition to the statewide summary, there are reports for:

  1. People living in State Centers
  2. People receiving supports under the person/family-directed supports waiver (PFDS)
  3. Reports for each county MH/MR program (each year approximately an additional 48 reports)

For access to these reports, please contact Celia Feinstein or Jim Lemanowicz at iod@temple.edu.